There doesn't appear to be much downside to being on the sidelines at the moment.
Two things could change that:
- some sort of licensing agreement
It wouldn't surprise if there aren't potential partners seeking to have an option (eg first and last offer) given that the FXS phase 2 trial is successful.
- social media commentary from parents in the FXS trial
Given that the Retts trial feedback was quite extensive, it is somewhat of a surprise that virtually nothing has leaked despite 72 patients being enrolled. It was interesting to note that one of last weeks attendees at the info meeting asked whether the increase from 60 to 72 (after the original enrollments were behind schedule), occurred because of positive feedback within the FXS community about how the trial was proceeding.
I can't think of a more likely reason why enrollments would suddenly jumped.
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