Good research,... it's quite difficult to get agreement on the number of people affected by RETT in USA.
One reputable website with stats about RETTS (https://healthresearchfunding.org/18-amazing-rett-syndrome-statistics/) says :
11. In the United States, about 16,000 children and women are affected by Rett Syndrom
Aprox 3 times your conservative figure.
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