Yup, that is what they were at pains to explain to me as part of my assessment for inclusion.
It was done in a ~15-minute phone call last week after I emailed asking to be included.
The first appt will be 8-hours, and then probably Monday and Thursday hospital visits there after.
Hope they get plenty of interest, not everyone will be able to take it on, especially if they are still working.
Cheers
Cabe
Ann: Preliminary Results from Phase 2 MPS I Study, page-17
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