Thank you dking for the 9 News video regarding two children with DIPG and the parents demanding answers as to why there are DIPG clinical trials recruiting in the US and not yet available in Australia.
Moved video post to this thread.
Thank you edinamac for bringing the DIPG dilemma to our attention
IMO, the father who talked about his daughter eve (who has DIPG), is most likely using paxalisib ( if she has a PI3K mutation) on compassionate grounds, and purchasing ONC-201 from Germany. Matt Dun has likely arranged the medical treatment in one of the children's hospital in Sydney who are members of the PNOC consortium..
Good to hear eve is doing well with the combination treatment.
Regards.
DIPG Panel Discussion, page-10
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