Hi Hottod,
Again many thanks for your well-researched insightful posts.
Do you have an idea what % of these rare condition medicines in U.S. are privately paid for, if any? Even at bottom of the range I doubt there are many that could enter into ongoing purchases. So, if greater majority of patients are covered by insurance wouldn't we want the agreed price to be as high as possible? Are many of these medicines underwritten by funds raised by support groups? I wonder what % of the sufferers are covered by insurance? Does America have any safety net system to enable non-insured sufferers to have access to these super expensive treatments?
Cheers
Media News, page-39
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