primaus
Lets hope that commonsense prevails and the approval goes through so that the product can be available to sufferers. I was listening to the radio a few months ago, to be exact, it was the day before Good Friday 2010...and the DJ's had a interview with a young (12yo) CF sufferer in a Sydney hospital. The reason that I remember it being Easter is the family were given an all expenses paid day at the Show. CF affects not only the sufferers but their family in many ways. Every day is a challenge for these ppl, and the Pharmaxis product will help them, and improve their quality of life.
Its a bit of a bugger that the PBS has not been sorted..for these types of companies who have invested millions into research, have done the trials etc, their products should be readily accessible (financial) for suffers. Bruddy frustrating actually...LOL.
Sorry about the long winded post :)
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