personally, I think that post is nonsense. for starters, I think we can all agree that a mother (a real mother that is) in that situation wouldn't lie - there would be no need to. Yet, 'she' states that...
"one of the team at the study in Houston..... reminded me that what Amy received was a very low dose of NNZ so there's so much more potential for our girls to improve".
Bull. The trial is double blinded. No health professional would be so irresponsible to mislead a family member by pretending to know whether they they were getting the drug, let alone speculate on what a higher (untrialled) dose is likely to do. I'm just waiting for Neuren to decide that they must put this on the front page to warn people about reading it.
retts syndrome, page-5
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