My Covid-19 symptoms have lasted more than 100 days, and I’m not alone. Will they ever end?My first Covid-19 symptoms appeared on March 14: a low-grade fever, profound leg pain, malaise, and loss of appetite. More than 100 days later, Covid-19 is still with me. Some days I wonder if it will ever leave.
In the early days, as my symptoms fluctuated, I was determined not to go to the emergency department or urgent care because it seemed like there were too many people who needed the help more than I did. Maybe I was especially sensitive to overcrowding in emergency departments because I’m a physician. But it turns out that this strategy was a common one.
In New York City, where I live and work, there were more than 5,000 excess deaths not directly linked to Covid-19 between March 11 and May 2, likely because people were delaying care or not going to emergency departments or urgent care due to fear of contracting Covid-19 or oversaturating the medical system.
I did eventually go to the emergency department one day when the abdominal pain and nausea were severe. Routine testing showed that the level of liver enzymes in my blood was higher than it should have been, but not much more, and I was sent home.
Once day 14 had passed, my fear of an impending respiratory collapse turned into an uncertainty about the trajectory of my disease and a desperation for answers. I contacted my doctors regularly, hoping their responses would bring relief in the form of some intervention. Yet most of their efforts did little to significantly change the course of my symptoms.
As a relatively inexperienced physician, the bulk of medicine I have practiced has been focused more on the known than the unknown. As a psychiatry resident, I have become somewhat more accustomed to diagnostic uncertainty and clinically guided trial and error. Yet as my Covid-19 symptoms dragged on, my physician identity began blending into my patient identity. As I repeatedly encountered the term supportive care, I realized that this wait-and-see approach hardly seemed like care at all.
Doubt started creeping in. Mild and moderate cases resolve within two weeks, I kept telling myself over and over, while my body was telling me a different story. Soon, though, articles about the potential for prolonged symptoms trickled in, easing the isolation I felt from being an outlier and giving me some hope. At the same time, the guilt of being unable to assist my colleagues in a time of crisis lurked in the background.
My search for answers eventually led me to an online support group that included people like me with prolonged Covid-19 symptoms. In addition to validating my experience, I felt a strong sense of belonging to a larger community as I read through reports of others going through the same thing I was, sometimes even with the same emotional response.
Some in the group had prolonged low-grade fevers that didn’t respond to standard fever-reducing medications. Some experienced terrifying neurological manifestations such as memory loss and changes in their ability to recall words in a primary or secondary language. Others were battling exercise-induced fatigue, with attempts at walking around the block sparking a relapse of symptoms. I’ve seen people citing symptoms in the central and peripheral nervous systems, the gastrointestinal tract, the skin, cardiovascular system, and more.
https://www.statnews.com/2020/07/08/my-covid-19-symptoms-lasted-100-plus-days/
