I am not of the reddit generation, but during my searches to try and find some social media feedback from trial participants I came across this thread.
https://www.reddit.com/r/iih/
Did not find anything related to the trial, but I found a large number of posts(updated by the hour) of people who are struggling to come to terms with their condition, desperate to be taken seriously by their medical providers and fumbling around to try and find a solution or even the hint of solution for their condition.
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- Ann: Invex Receives Regulatory Approval for IIH EVOLVE in France
Ann: Invex Receives Regulatory Approval for IIH EVOLVE in France, page-7
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