It’s interesting that there is such a variety of reactions or non reactions. Maybe they’ll find out one day if there are different variations of gene mutations of Rett that cause the differences.
Nevertheless Mel you are a pioneer in finding options of management and your determination will be helping many now and those in the future
I think I can say for most here - we are very grateful and hope the final recipe is found soon
Katelin’s Turn is HERE!!!, page-168
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