Hottod
Another well constructed and reasoned post. You are a wonderful asset here on these NEU pages.
As for gaining FDA approval that is driven by advocacy groups, we need to look no further than rettsyndrome.org and other associations that support RS suffers. They are passionate and very active.
They, I expect, would lobby long and hard for their children and families.I hope, like most holders, that this will be unnecessary when positive results land during the Lavender and Lilac trials.
ACADIA TALKS TROFINETIDE, page-64
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