HI GC - great post as usual. Although after reading it I did have a look around myself - and noticed that Taysha has applied for clinical trials in the UK -
"Taysha has submitted a Clinical Trial Application to the UK regulator, the MHRA for a clinical trial in children. No information has been shared regarding age group at this time. "
Now from my perspective - having to wait several years before Daybue will possibly arrive in the UK - this trial is very tempting to help my daughter and I would assume the same for other parents of Rett children in the UK - so albeit a small market it could be that Daybue gets here too late, obviously depending on how speedily the gene therapy trials can complete.
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