Wishing you all the best @peony-rose.
In the last few years there has been some amazing progress in the treatment of amyloidosis.
Three years after being diagnosed, I am now in remission. My treatment now consists of taking medication daily and a monthly visit to hospital for IVIG and Daratumumab.
I am able to do everything I was able to before being diagnosed, which is amazing.
In the last twelve months I have been on two overseas trips, something I thought impossible before.
Just a tip to get through this, read everything you can about the disease, get a good doctor that specialises in amyloidosis and do everything the specialists tell you.
Feel free to contact me through HC or X if you have any questions.
There are good groups on FB that offer good support and advice.
Wishing you all the best @peony-rose.In the last few years there...
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