11..Brighter Days Festival - Bright (cancelled 2 years in a row)
A three day festival to support two charities - (i)DEBRA Foundation (Dystrophic Epidermolysis Bullosa Research Association); a not-for-profit volunteer based organization that works tirelessly to support those living with EB; a rare debilitating disease whereby the skin blisters and peels at the slightest touch. Living with EB has been likened to living with third degree burns. It is very painful, and sufferers must be bandaged every day with dressings to protect and medicate their wounds and (ii) the Cooper Trewin Memorial (SUDC) Research Fund is a charity close to some of our groups heart which assists in research for unexplained deaths of perfectly healthy toddlers (Sudden Unexplained Death In Childhood).
Apologies to the event organisers but this is the devastating impact this rotten Andrews Labor government is having on ordinary folks trying to do extraordinary things for their communities.
