Here is some info on zolgensma, the drug that is apparently putting a dent in spinraza sales. Another gene therapy now most expensive ever. Interesting though that they claim it is a once off application that effectively fixes the issue permanently.
https://www.npr.org/sections/health-shots/2019/05/24/725404168/at-2-125-million-new-gene-therapy-is-the-most-expensive-drug-ever
Novartis set the price at $2.125 million but offers insurers the ability to pay $425,000 a year for five years. This price tag makes Zolgensma the most expensive drug ever approved.
The drug is delivered as a single one-time dose to address the genetic root cause of the disorder, the company says, producing long-term effects.
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