This is why i was interested to know if all the previous (4-5) treatments our trial patients had failed were all SOC. or if one or more were other trials. My step father died of myeloma mid 24, after a 20 yr battle since being diagnosed. Years of soc then after failing them a couple of trials. Mums best friend was going through exactly the same process but a year behind. Step dad was a 3 year share holder of imu and was still unable to get on due to his doctors being oblivious to our trials. Same as friend. These results could/ should move us up the " cab ranks" as prefered option when looking for applying to be participant's is these trials. Hence partaking in the current conference in Hawaii. " you've got to be in it to win it. Its imo u huge shame the way the system is atm. Step dad failed last treatment of many and was told " sorry but thats it" basically. He went down hill very quickly after that. After 20 yr battle it was over in months. Imo we should be able ( once safety established) to choose to take what ever we want. The imu's of the world should be able to offer treatment to these people who have no other options left without it effecting our " one chance" at trial results. My father is another example. Died mid 24 also of bowel then everywhere cancer. He refused any or all treatments. Probably mostly due to his and most peoples longterm preconceived perception that treatments were only chemo. Id be very confident that if the doc had said hey have a look at this, minimal side effects ( no where near the side effects of chemo) do you want to give it a try? He would have jumped on it. As would have my step father. Both probably would have payed for the privilege. Hell i would have payed. These are affluent 1st world people who are offered SOC. Imagine the 2nd,3rd world patients who are offered nothing? These recent results only reinforce this thinking. For me and more importantly potentially tens of thousands in positions to offer these treatments. This day and age dealing with very intelligent doctors( the people who offer these treatments) and we still need to put it out there on an airport billboard to raise awareness??? To increase our pool to cherry pick our trial participants. Kennedy in his new position now. Good? Bad? Imo any changes couldnt be much worse than this current system.
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