Am making my way through both reports, but the additional patient comments report from the online submission makes for (very) hard reading.
it’s hard to compare like for like diseases - blindness is one impairment but as a parent reading through the life of families providing care and support - this is heartbreaking account of pain and suffering
PYC is entering terrain that’s not for the light hearted, and presenting a glimmer of hope even to patients and families… you have to be pretty bold you have something tangible to offer here…
Ann: Central Nervous System Drug Program Added to PYC Pipeline, page-38
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