I like this bit the most, almost all patients continue treatment - this is a strong message for medical authorities:
'As one of the measures of clinical effectiveness it was found that, as of 30 June 2017, 99% of the EPP patients were still continuing treatment. Further analyses of clinical effectiveness are being conducted for those EPP patients who continue treatment and those who received their first treatment after 30 June 2017'
Ann: CLINUVEL hosts European EPP Expert Meeting, page-2
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