I asked the company about Fragile X at the end of January- see my question below and reply in capitals from Jon.
1. Who is driving the further development of Trofinetide for Fragile X? It seems the Fragile X community has been left behind ACADIA IS FUNDING AND EXECUTING THE DEVELOPMENT, SO THEY ARE DRIVING IT, BUT UNDER THE AGREEMENT NEUREN GETS INPUT THROUGH A JOINT STEERING COMMITTEE. IT IS TRUE THAT ACADIA HAS PRIORITISED THE LARGE INVESTMENT OF PEOPLE AND DOLLARS INTO RETT IN THE SHORT TERM, BUT WE ARE STILL COMMITTED TO THE FRAGILE X COMMUNITY.
Ann: Compelling results for 2591 dose ranging study in PMS model, page-41
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