A study wants to recruit as many people as it can for the here...

A study wants to recruit as many people as it can for the here and now. If you complicate your request in this already confusing time for the patient and family by asking for rights to store and test for perpetuity, you risk reducing your total number of recruits and therefore the quality of your present study. Not to mention, patients will very rarely respond in a uniform manner. ‘No sane person’ - the most sane people can be rendered less rational during stages of grief and whilst becoming exquisitely intimate with the sense of their mortality.