and we wait......
Lets hope some commonsense prevails and its gets some sort of approval. There was a programme on TV the other night about CF..and the spokesperson from the Melb institute (can't remember which one) made a comment that there are therapies available that will increase the life expectancy of these patients to at least 50 years. (there was no reference as to what those therapies could be). It would be very sad indeed if PXS have developed a product that will improve the life quality of sufferers, but they never get the opportunity to use it.
Who knows, maybe the approval will get across the line for all age groups.
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