some of the things I have seen in the socials;
- Daybue uptake looks strong. probably seeing 10-15 families a day that are starting / about to start.
- Most are titrating to dose over 4-6 weeks starting at roughly 1/4 dose and going up weekly or as symptoms appear/managed. Hopefully titration will significantly decrease the prevalence of diarrhoea in these kids.
-Like goldenchook said, there are posts about some of these kids now adding some words/phrases to their vocabulary or even having more control over their bodies - lifting a arm, sitting up... Others are more observant and engaged.
-ROW are feeling frustrated at not having access to this medicine esp when they see their US counterparts posting about progress. I Imagine JPs email inbox is full of these families seeing when their loved one can access.
Whilst we know its somewhat a strategic decision about the company and ROW rights, I reckon these families couldn't care less if Neuren is listed or has disclosure rules etc. They prob just want access..
Whilst I am a little guilty of overanalysing 5-10% swings in the SP but really - the real story here is that these kids now have a treatment. Regardless of stock returns, science has won here.
Have a good day folks
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