Rushin said the process to get Daybue for her daughter was the hardest thing she’s ever done.
DAYBUE was approved by the U.S. Food and Drug Administration on March 17.
“It was approved,” Rushin recalled. “We were ecstatic, ‘Oh my gosh, we got it, we’re approved.’”
That’s when they hit another roadblock because the pharmacy that administers Daybue was out of state.
“It then came back, and they denied our approval based on Daybue was not on Michigan’s MPPL list,” Rushin said. “It’s been a lot of hoping, it’s been a lot of waiting.”
The Michigan Pharmaceutical Product List is the list of medications approved for coverage under Medicaid.
On June 6, the Michigan Pharmaceutical and Therapeutic Committee met, and at the top of the agenda was the approval of Daybue for Michigan families.
“I woke her up and I told her, she gave me this little smile, and we’ve just been waiting for this day,” Rushin said. “Today was the day she had her first dose.”
https://www.wilx.com/2023/06/17/cli...s-treat-daughters-rare-neurological-syndrome/
Rushin said the process to get Daybue for her daughter was the...
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