One Step Closer
by melelllan on February 14, 2015
It is just after midnight and my girl is sleeping (thank goodness!!) and I wonder if her and other Rett children’s dreams just became filled with butterflies. Why butterflies? Because they are to me a most beautiful symbol of metamorphosis, of evolving, of change. Tonight, as she slept this came our way….
"FDA Search Orphan Drug Designations and Approvals" page
NNZ-2566 has been granted Orphan Drug Designation.
What does it mean? To be honest, more than I can understand. I know it means huge incentives for Neuren, with 7 years marketing exclusivity if (when!) the FDA approves it for use, tax breaks etc. but what I FEEL in my heart is that the FDA is acknowledging the Rett Community needs this, our children need hope, us parents need hope. And, I FEEL like a magician just placed a cocoon in his hand, blew in it, opened it up and a thousand butterflies filled the air…for there it is, in writing, by a FEDERAL AGENCY- “treatment of Rett Syndrome”.
The world is achanging and it’s a beautiful thing.
FDA Grants Orphan Drug Designation, page-24
Add NEU (ASX) to my watchlist
 (20min delay)
|
|||||
|
Last
$19.09 |
Change
-0.220(1.14%) |
Mkt cap ! $2.437B | |||
| Open | High | Low | Value | Volume |
| $19.14 | $19.14 | $18.50 | $7.048M | 371.7K |
Buyers (Bids)
| No. | Vol. | Price($) |
|---|---|---|
| 1 | 420 | $19.07 |
Sellers (Offers)
| Price($) | Vol. | No. |
|---|---|---|
| $19.09 | 1 | 1 |
View Market Depth
| Last trade - 16.10pm 10/05/2024 (20 minute delay) ? |
|
|||||
|
Last
$19.03 |
Change
-0.220 ( 0.79 %) |
||||
| Open | High | Low | Volume | ||
| $18.96 | $19.10 | $18.52 | 96070 | ||
| Last updated 15.59pm 10/05/2024 ? | |||||
| NEU (ASX) Chart |