Hi Guys, sorry I haven’t updated in a bit; issues with Katelin’s...

Hi Guys,
sorry I haven’t updated in a bit; issues with Katelin’s day program have upended our routine. It’s a challenging time.

The speech therapist spoke with Susan Norwell, a Rett speech specialist and after a some more sessions determined that she should be evaluated for a Tobii now that they have improved and/or wait for Dayb ue to have a chance.

Thanks for giving Katelin a chance that way.

She has decided she hates bananas, and this impacts her ability to stay at 50ml

Good news is she continues to come out with new words “good job” at something she did; cheering for her nieces during soccer games “Go!, help! Surrey (one of their names, Callan remains out of reach) she routinely is sliding the car door and pulling down the arm of her seat to climb in. She is choosing to walk more often for short distances. I took her to a movie and she laughed at appropriate moments and clapped afterwards.

One really incredible thing is the use of her right arm. She had status epilepticus as a toddler and her right side was temporarily paralyzed. She’s hardly used her right hand/arm, but NOW, she is reaching and grabbing things with her right and transferring to her left. I’ve watched the progression over the last year and a couple weeks ago she stretched it full length for the first time since she was 3.

I’ll be doing a post later in June about her year of Daybue but I wanted to update you all. ❤️