NEU 5.05% $12.89 neuren pharmaceuticals limited

I hope do a blog post next week. Still no day program. But, I...

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    I hope do a blog post next week. Still no day program. But, I wanted to let you know she used my name in a sentence for the first time … it’s all your fault, Mommy.

    she sure thinks a lot of things are my fault, lol.

    I’ve got her at full dose for two weeks, now. Her motor function is really superb. Her language is lagging behind, but she is watching different videos and listening to different audio books and is starting to answer questions…did you see that?!? … I saw! “Absolutely “ to a question. She’s calmer, staying up later and sleeping through the night. Diarrhea is under control, lactose free milk has made a huge difference with gas (Daybue curdles/separates milk).

    Her next Rett appt is in August. They are gonna be blown away.

    When I was at the conference, one of the mom’s said… oh, you’re the Daybue success- Katelin is a success story and all of you are woven throughout the plot of this fantastic story. ❤️ The journey’s not over but I feel we are on a paved road now. That was a rough ride. Whew.
 
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