Daybue Trail: A Day Unlike Any Other Day
Posted on August 5, 2024 by melelllan
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I’m so far behind on posts it’s not even funny. Katelin is still not in a day program and so our days are filled with going here and there, trying to keep her ever evolving sense of “there’s more out there” entertained. The heat is nearly unbearable, and our choices are limited- the mall, the very shady zoo, the Children’s Museum. Today, however was not like any other day. We had a huge chunk of time and filled it with the California Science Museum.
There’s a lot packed into three small floors, some aquariums, hands on experiences and a large exhibit devoted to space exploration- the final frontier- and tucked away between two other exhibits was an infrared reader. And the day became unlike any other day.
I’m not sure I can adequately explain what was happening inside of me when I saw that little scanner. Wondering, building upon itself, fidgeting waiting for our turn, almost afraid to dare to hope and hoping more and now wondering out loud, someone saying I could go ahead of them, but NO! I wanted no one waiting behind me. I think they were quick at it because I was acting just a tad bit like a person I might not want to be too close to either. And THEN…it was time to find out the answer. I felt like bees were buzzing all up inside my skin.
What answer, you ask? What colors would it show on her hands and feet. The last time we were there in the summer it showed her hands and feet as blue. And I wondered- would they be red this time??
I pulled her up close, I raised her hand and… it was RED!!! The very same as mine. I felt like I hit the lottery, the jackpot, the gold medal of waiting out trials to WIN irrefutable proof, scientific proof, objective proof that Daybue had made a physiological change in Katelin’s brain. Do you KNOW what that felt like??? Can you guess??? I held up her right hand, her left hand. “Oh, oh, her feet, I wonder about her feet!,” grabbing her shoe and sock off and pulling her foot up high enough, grabbing a person in line- “take a picture of her foot!! No, no, the one on the screen!” That beautiful red little foot.
Hands and feet showing as blue/cold
Taken in summer
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Hands and feet showing as blue/cold Taken in summer
Foot is red; Taken in summer
Hands are red
Taken in summer
" data-medium-file="https://trailtoatexastrial.wordpress.com/wp-content/uploads/2024/08/infrared-post-daybue2-1190493467-e1722833016977.jpg?w=300" data-large-file="https://trailtoatexastrial.wordpress.com/wp-content/uploads/2024/08/infrared-post-daybue2-1190493467-e1722833016977.jpg?w=417" tabindex="0" role="button" loading="lazy" width="417" height="323" data-id="6195" src="https://trailtoatexastrial.wordpress.com/wp-content/uploads/2024/08/infrared-post-daybue2-1190493467-e1722833016977.jpg?w=417" alt="" class="wp-image-6195" style="-x-ignore: 1">
Hands are red Taken in summer
I jumped, I spun in a circle, I cried. I felt like a person who had made an actual scientific discovery, one I had hoped for, like an amateur astronomer who discovers a new star. Katelin and I helped to make this discovery possible. I felt every bit as proud, overwhelmed, and simply beside myself as I imagine anyone who chanced upon a discovery would. This will be a moment I NEVER forget- the day I proved Daybue may be the answer for some when it comes to temperature regulation, and it may improve the medical quality of life of some of our children.
https://trailtoatexastrial.wordpress.com/2024/08/05/daybue-trail-a-day-unlike-any-other-day/
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