I watched the whole hearing. The submissions by cd suffered and clinicians were numerous and moving.
The drug obviously works. To add insult to injury people in Europe and Australia get to use it. I will do a full write up for you at some point but what is clear is that if your child had cf if you had the ability you would trial your kid on bronchitol. For those that want to cough up their bacteria ridden phlegm it has been described bu users as life changing. Very sad result for American cf sufferers. Whatever paper loss you are sitting on - they have lost something far more valuable...
Time.
Keep it in perspective.
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