Probably a lot more. There’s active National Societies of MPS in Oz and the US.
its a very connected network with annual conferences in Orlando for families and big day to day support networks. PPS and Paradigm’s efforts have already been circulated amongst the community.
I can recall a study done that showed PPS helps normal skeletal (spine & skull), and aorta development if applied early enough in juveniles in animal studies. It was a dramatic difference.
We have a real shot at making a huge difference to that community. Target pharmaceutical companies for partnership would be Biomatin and Sanofi, if any. Such a targeted, well connected community would require little sales effort.
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