NEWRON FAIL RETT, page-18

This is the whole conversation about it. I sent her a private message asking about how it is going... Don't expect a reply, but why not?

Carrie Weaver We just started in Boston last week! Med drop this am. The trial is very organized and methodical. Its so hard to be patient when it comes to our kids but after the appointments and how it is all run I would prefer it this way so we know the data is solid. We want to help our kids and this may be the way. But it needs to be done right. There is no 2nd chance imo when it comes to drug trials

Tonya Hanna Carrie Weaver so exciting! When do you start? Our site, GGC in SC, has not become active yet. Anxiously awaiting it, with excitement, hope, and some nervousness.

Carrie Weaver Tonya Hanna we started last Tuesday. We are the 2nd family to start in Boston. GGC should be starting up soon. They are working to get the kinks out with families that have previously participated in clinical Trials. We are making it easier for you.

Graham Whitley Carrie Weaver That’s amazing! All the best wishes to you and your family! If you don’t mind me asking without getting too personal, what made you decide on this trial? Or how did you find it?

· Masal Masal Can you see some effect?

Paige Nues Thank you Carrie Weaver, you're making history happen!