I'm not 100% but I believe the Trial Patients have metrics taken each month but couldn't see it in the Trial Registration https://www.anzctr.org.au/Trial/Registration/TrialReview.aspx?id=22117&isClinicalTrial=True
PAA owe a considerable amount to these Trial Patients for their efforts but the reality is that MPL has also added considerable life extension with only a 5% drop in Quality of Life , I was under the impression Trial Patients receive a lifetime supply of MPL? but see it states 12 months so perhaps that just extends out at the end of the 12 months..
Don't believe anyone wants to see a Patient Dragged anywhere? but are assisted by caregivers as in the Trial requirements...
I'm not 100% but I believe the Trial Patients have metrics taken...
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