Comments from RettSyndrome.org and RettLand Foundation web sites:
INCREDIBLE! ELEVEN sites - this is HUGE for Rett syndrome, HUGE for families, and HUGE for the entire rare disease community that dreams of multi-center clinical trials. Thank you Neuren, thank you FDA, thank you #rettsyndromeorg supporters. We're proving it can be done! Paving the road, pulling the future into today!
We are excited and ready to sign up Luz
Great news. Still waiting to see if there will be a site closer to the DC area.
This is Wonderful news!
Rett Study, page-2
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