From RettSyndrome.org Facebook page.
Neuren held a meeting for the participating sites in the pediatric study (Rett-002) in Marina Del Rey, CA on February 26-27, 2016. Representatives from twelve sites were in attendance to partake in training sessions and contribute to discussions about the study. The meeting was received well and everyone left feeling prepared and eager to begin enrollment. Rettsyndrome.org also attended to share in recognition and support of this exciting study.
All sites are still currently working on their IRB submissions and we will make an announcement when each site receives approval to begin recruiting for the study.
Rettstudy.com still lists only 11 sites.
Rett Study, page-3
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