Are these the fundamentals you're talking about ???
We are on day 5 of Daybue- this lady has slept through 95% of her school this year so far- the last 2 days she has been fully awake, engaged,happily answering questions, and making choices for her 2 hour school days. Today she choose to read a choose your own adventure book with her teacher and she was very engaged with wanting to look up info and watch videos about the choices in the book before deciding. She chose this very interactive and energy intensive activity for the full 2 hours. When the teacher left she said (using her tobii)- “Teacher, come here I love you!”I know we are just at the beginning (she is only on 6ml twice a day - target being 50mls) and we are going to be in for it GI wise (I can already see the GI slow down happening) but I’m encouraged because this level of enthusiasm and engagement in school activities is directly related to how she is feeling and how hard Rett is hitting her. The last 2 days have been a win- it was so nice to see her loving school!
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