On start time for Rett-002...
"...All sites are currently preparing submissions to their individual Institutional Review Boards and can begin recruiting participants once this process is complete, which can take from weeks to months. As they receive approval to conduct the study, and can begin discussing enrolment, their contact details will be posted on this site. Please see the Investigators/Sponsors page for a list of participating research sites. A contact form will also be available so you can register your interest. In the meantime, please keep checking this site, as well as Rettsyndrome.org for any updates on the study."
http://www.rettstudy.com/faq/
I don't know exactly when this went up, but sometime between Dec15 and Mar16.
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