Now of course you can't trust anything you read on the web, but I just went to reread that website and realised there was a comments section. Amongst the more general comments are these three:
"My daughter, Siera, age 25, has Rett Syndrome and is a participate in the NNZ-2566 study and the results were amazing! Her quality of life improved drastically making me certain she was on the medication."
"My daughter was in this study as well. I saw overall improvements. She did not have any seizures, she was awake and alert, she walked independently which she has not done for several years. Her overall health improved. Stamina, walking, seizures all improved while on NNZ medication. After just a few days of coming off NNZ my daughter went right back to all of her problems. She's having seizures, head is back to hanging down, she does not want to walk without full support from me, her overall health has declined and gone back to the way it was prior to taking NNZ. Please hear our voices for our girls who cannot speak for themselves. This has the potential to really make a global difference for all of our girls/women."
"My daughter has Rett syndrome and was in the NNZ trial. We saw some small improvements. And would love to see more!"
NEU Price at posting:
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